Muscular Dystrophy and MDA Information
We have mentioned that CCL's Jason Grote is attempting to raise awareness and support for children with muscular dystrophy. Here are a few more relevant detail as you make your decision to help support the fight.
There are no known cures for muscular dystrophies. You money will go to treating its symptoms.
The Majority of severe forms of muscular dystrophy occur in early childhood. Any help you put forth goes to MDA, which provides services to local families living in San Luis Obispo and Santa Barbara counties.
More information to track your money that goes to MDA:
- Clinics - expert specialized medical care at UCLA, USC, and Stanford. All clients registered with MDA receive free clinic visits with world-class neurologists.
- Research - cutting-edge investigation into treatments and cures. MDA funds over 330 research projects worldwide to fight 43 different neuromuscular diseases, including ALS (Lou Gehrig's Disease).
- Support - help obtaining equipment and coping with challenges. MDA operates an Equipment Loan Program, where clients can receive durable medical equipment at no cost and for long durations of time.
- Camp - a barrier-free week of fun, friendship and laughter for kids. Our week-long summer camp sessions are free to all children ages 6-17 who are registered with MDA. MDA Summer Camp is completely accessible and each child is paired with their own personal camp counselor.
Here is a link to Jason's MDA page where you can donate.
https://www.joinmda.org/MyLockup/MyHomepage/tabid/221388/Participant/jason/De...
